All our stories are different. Disorders of the Corpus Callosum will have a different effect on every person, so we can’t tell you what the outcome will be following the diagnosis. Our stories are meant offer hope and the knowledge that others are on the journey with you. That you are not alone.
If you would like to share your story with others please contact us via the form at bottom of page.
Abby’s Story
Dysgenesis of the Corpus Callosum,
vertical tailis, chronosasal artresia, moderate hearing loss, lazy eye, missing rib.
My Sister Abby by 12 year old Tahlia
Dysgenesis of the Corpus Callosum,
vertical tailis, chronosasal artresia, moderate hearing loss, lazy eye, missing rib.
Matilda’s Story
Isolated complete ACC
secondary colpocephaly, absent septum pellucidum, absent cingulated gyrus
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